Cyndy Gilbertson and Leonore Gordon, veterans of the annual PAN Forum, combined their PAN participation this year, with a full day of being clinically screened for future eligibility in clinical trials at the nearby National Institute of Health in Bethesda, MD. “We recommend this experience to anyone with PD,” Cyndy and Leonore agreed. “The goal is to assess each individual’s PD, enter them into the NIH PD registry, and to thus be considered for future clinical trials.” Cyndy and Leonore were both impressed by the professional, respectful and warm demeanor shown by all who interviewed them.
Copies of NIH findings and recommendations for treatment of each patient who is screened are sent to their physicians. NIH pays all travel and hotel expenses for patients and a helper for each patient. To arrange for an NIH screening, contact Mae Brooks at 301 496 4604.